SoleilShines

Patient to Patient Resources for Children, Teenagers and Young Adults with Life-altering Health Conditions

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Chronically Beautiful

Book of Poetry

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Why SoleilShines?

Throughout my life battling with the unknowns of my chronic illness, I always wished there was a website to turn to that would help me out of the dark and help me find the answers that I was so desperately craving. These questions I had couldn’t be accurately answered by my doctor’s due to the liabilities they hold as my caretaker. Some examples of such questions that I have personally asked include:

  • How did my anxiety originate?
  • Does (type of prescription medication) interfere with my own hormones and does it work differently due to my condition?
  • Why does this (type of pain) happen so frequently to me?
  • Did my brain surgeries change my brains makeup therefore causing my learning, mental health to be different?
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Can You?

Numbness in my fingers
Stiffness in my Legs.
Everything Must Stay Frozen
For my Life I Live I Beg.
And Movement Is Freedom
Decay is Not an Option
I Stare at the Bones in my Hand
Knowing This Isn’t Random.
Can I Stop a Fast Moving Train?
Gripping The Rails with my Toes
Should I Exercise A Muscle?
When it Will Only Go.
I Live a Beautiful Life
Balancing on One Leg Instead of Two.
Though I Can Say I’m Brave
Can you?

Rose 🌹

Everything must work at once, last Rose of Summer, serious beauty, the lies, and realizing truth. 

No one other than you can see the real battles you’re going through. 

That may sound sad, or it holds power. For you are not a fragile flower.

Yes, everything’s weak. Yes, you feel broken but you are rebuilding into something for-spoken.
You are not spoken for NF2. You are spoken for you.
There’s beauty in you the world has never seen. You have to be bent in order to be a queen. 

This life wasnt made to be simple and easy

Oh, so I wish, but they’ve never seen you.
You won’t be broken by stitches and cuts
Yes, it may hurt and you’ll say I’ve had enough
But love you are not broken you’re rebuilding you. There is so much light shining through you.
You will get back to who you once were.
Though she never left. Shes fighting inside you.
Waiting her turn for when you are through
Through with the weakness through with the pain
Soon you will see your hard work hasn’t been in vain.
There’s no timestamp on recovery It takes as long as it takes.
Do not rush my love take your time allow your self to hurt.
It’s OK it’s been a lot you’re allowed to feel.
Everything your body’s telling you is absolutely real.
It’s also on your side it will not let you down. It’s working as hard as you.
You’re not two things you’re one. Let’s do this and then we’re done.

 

Spread Sunshine

Camille Thoms

Knitting 🧶 her blankets as long as they’ll go

Cramming thumbs beneath loops 

Love pouring through my fingertips 

What a beautiful girl, I really am, strong determined and loved

You’re battling hard my sweet firefly 

I know you don’t recognize yourself 

That’s scary of course but you’re still you 

She is climbing out through  all the yarn 🧶 you’ve knit 

The fabric of you still shines through 

Your blanket is not broken 

Some loops are a-fray 

It has mending to be done 

Our latest post and updates

Sometimes

by | Mar 21, 2023 |

Sometimes I don't want to talk about it, sometimes I do. sometimes I want to talk about it, but not with you.  Sometimes my head screams, I just want to yell into the void, When things get all foggy and dizzied and I can’t do the things I’ve enjoyed. No sometimes it’s...

read more

Rose 🌹

by | Mar 21, 2023 |

Everything must work at once, last Rose of Summer, serious beauty, the lies, and realizing truth.  No one other than you can see the real battles you're going through.  That may sound sad, or it holds power. For you are not a fragile flower. Yes, everything's weak....

read more